Human Subjects Issues


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Example of a cover letter

Margaret Jackson
The Evergreen State College
2700 Evergreen Parkway NW
Olympia, WA 98505

(To Participant)
To Whom It May Concern:

This research protect conducted by Margaret Jackson, a student in the Community of Self Program at the Evergreen State College, hopes to survey the news viewing and news reading habits of a target population.

Participation in this survey is and will remain confidential and there are no risks to the participants that can be foreseen at this time. This survey will hopefully assist the student in gaining a greater understanding of the power of communication through the available media. Results can be made available to participants upon request.

The person to contact in the event that the participant experiences problems as a result of participating in this project is Masao Sugiyama, Academic Dean, The Evergreen State College, L-2211, Olympia, WA 98505 (360) 866-601 Ext.: 6512

I will try to answer any questions you may have on completion of the survey.

Thank you for you time and participation.

Sincerely yours,



Margaret Jackson
Student Researcher
Community of Self Program
The Evergreen State College




1 pm Class Potential Risks in 3 Research Situations

The Situations are:

  1. Interview a young child about death and dying.
  2. Interview elderly about memory and doing some memory tasks with them. You work at a retirement home.
  3. Interview people walking down the hall at Pierce College about their education (best teacher, worst teacher, getting their money's worth, etc.)
Risks
(Viet Le, Yolanda , Ingrid, Nadia)
parents permission
location - ???
your appearances the interviewer
approach as the interviewer
emotional aspect of the child & interviewer knowledge of the child about the questions interviewer ask
alarm child that someone died
as a research you could give a non-response, and the child can take it as his "thought" is right.
ask parents a lot of question s- curious ("Will I die?")
child gets ill
child gets nightmares
confuse child
confused of life & death
depression
difference in religion
expose to death might lead to experiment
fear of reliving situation
feelings
Kid scared
kids could get impression of being immortal
long term thoughts
loses trust in parents for lying about death
loss of innocence
might bring up unresolved issues with family.
morals beliefs (change or alter)
old memories brought forth
other people would think you were kidnapping the kid
Parents upset
start experimenting with drugs and guns cause everyone's gonna die anyways (media)
suppressed feelings
they'd get scared of parents/family dying
they'd get scared of themselves dying
trigger paranoia

kids wouldn't pay attention - not a human subjects issue


ELDERLY

Risks
Angry that they lost their memory & you brought it up
spark an imagination
may think they're dying
be violent
may end up spending all day listening to stories
decreased attention span
too emotionally stressful


KID

Benefits
Child gets better understanding
Adult gets a different perspective of death
someone to talk with
no judgment of recipient
dealing with past


ELDERLY
Benefits
spark an old memory
getting 1-on-1 attention
don't remember 1st set of pictures, therefore know memory is bad
prepare yourself for the inevitable

How do you deal with It?

Designing your Research:

Sometimes concerns about subjects help you see potential biases in research, like which questions you ask about death and dying. Have a plan: have a sense of when you will stop procedure.

Informed Consent:

This includes parents if there are people under 18 involved. Mention the nature of the questions you will ask. Mention possible risks and benefits

Let people know they can withdraw at any time during procedure.

Confidentiality

Keep information confidential. When reporting, removing enough personal info that person could not be identified. Let people know how you are going to report information (e.g. only grouped into averages, etc.; no individuals).

Roles

Think about whether subject will feel extra pressure. You're the one bringing the meals. If they say no, will you stiff them?

Will passersby overhear?

Roles also related to being able to keep confidential. Might have to go extra step.


Last Modified: Nov 28, 2002

Tom Link

tlink@pierce.ctc.edu